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Driven by Our Promise

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Congress Materials

Meet Us at an Event

ERS 2024 7–11 Sep 2024 Vienna, Austria Details

Expert Interviews

What is the Open Source Consortium (OSIC)?

Elizabeth Estes - USA

The importance of data repositories and potential future techniques for diagnosis and management of interstitial lung disease

Duration: 00:02:34

Diagnostic delay in interstitial lung disease (ILD)

Dr. Marlies Wijsenbeek - Netherlands

Dr. Wijsenbeek shares key clinical insights of managing patients with interstitial lung disease

Duration: 00:01:17

Gold standard endpoint for Alpha 1 Antitrypsin Deficiency (AATD)

Dr. Charlie Strange and Professor Gerry McElvaney - USA and Ireland

Importance of CT lung density as a preferential primary endpoint for Alpha 1 Antitrypsin Deficiency

Duration: 00:00:40

The role of patient organisations in rare lung diseases

Professor Daiana Stolz - Germany

The importance of involving patients and patient organisations in planning research and therapeutic decision making

Duration: 00:01:47

Diagnosing Alpha 1 Antitrypsin Deficiency (AATD)

Dr. Charlie Strange - USA

Dr. Strange discusses the importance of accurate and expedited diagnosis

Duration: 00:00:25

Self-administration in Alpha 1 Antitrypsin Deficiency (AATD) therapy

Dr. Robert Sandhaus - USA

Dr. Sandhaus shares real world evidence supporting self-administration. 

Self-administration is currently only available in the EU and CH

Duration: 00:01:13

Pulmonary rehab for Alpha 1 patients

Dr. Rembert Koczulla - Germany

Dr. Koczulla explains what pulmonary rehabilitation can do for Alpha 1 Antitrypsin Deficiency patients

Duration: 00:01:32

Self-administration in Hereditary Angioedema (HAE)

Dr. Andrea Zanichelli - Italy

Dr. Zanichelli shares his experience with self-administration of a plasma-derived therapy

Duration: 00:00:59


  • ERS, European Respiratory Society

Jul 2023